The day my multiple sclerosis symptoms taught me how to live well

If you are here, it is probably because you or someone close to you is going through the diagnosis of multiple sclerosis (MS) and its symptoms. And I want you to know something important:

You are not alone. I am with you!

The day my multiple sclerosis symptoms taught me how to live well

If you are here, it is probably because you or someone close to you is going through the diagnosis of multiple sclerosis (MS) and its symptoms. And I want you to know something important:

You are not alone. I am with you!

This page is a testament to the fact that, despite the challenges, living with MS is not only possible but can also be wonderful.

My journey with multiple sclerosis began a long time ago, in 1982. It was a turning point. Since then, I have learned a vital lesson: this chronic disease changes you, but it does not have to define who you are.

It was a turning point. From that moment on, I learned a vital lesson: this condition changes you, but it doesn’t have to define who you are.

Why does multiple sclerosis occur?

The causes of multiple sclerosis are unknown. When I was diagnosed, my symptoms were frightening, and not knowing what this chronic disease was caused a whirlwind of extreme emotions.

The following years were filled with uncertainty. I was very restless and curious. I didn’t understand why some days it was a challenge to get out of bed. My MS episodes caused paralysis, tingling, difficulty seeing and walking, as well as fatigue.

I didn’t understand what was happening because these symptoms were invisible, and I couldn’t communicate them.

For me, the most difficult thing was the lack of understanding from those around me, because many of these symptoms of multiple sclerosis are invisible.

At what age does multiple sclerosis appear?

I was diagnosed at a relatively young age. MS affects people of all ages, but it is most commonly diagnosed between the ages of 20 and 50.

My initial symptoms presented as spontaneous flare-ups that came and went, very much in keeping with the unpredictable nature of MS. I have learned that these symptoms of multiple sclerosis range from neurological impairments to cognitive challenges.

Every day is an adventure of discovery. I had to learn to slow down and accept that it wasn’t “anything wrong,” it was part of the disease.

My first symptoms of multiple sclerosis, a diagnosis that changed my life

My life changed when I was 12. One day, when I woke up to go to school, I couldn’t stand up: my entire left side was numb and weak. My vision became blurry and I felt very dizzy. I was scared.

My parents immediately took me to Houston, where I spent three days in the hospital undergoing countless tests, including a lumbar puncture. After that, a neurologist gave us the diagnosis: I had multiple sclerosis (MS).

We knew nothing about MS, very few specialists knew about it, and I only understood that there was no cure at that time. The doctor gave us brochures and referred us to a patient foundation, insisting that it was best to get informed. We started my treatment with daily injections of cortisone, an intramuscular anti-inflammatory that I had to be injected with every day for a few weeks—I don’t remember how many.

We left that appointment with my parents, completely stunned. That day began my journey to learn to live with MS.

I have done everything possible to ensure that MS is not a determining factor in my life.

My purpose: To turn experience into support

This website was born out of a deep need: to transform my personal experience into a tool of support, hope, and real information for you.

Surviving MS

It’s not just about helping you survive multiple sclerosis (MS), but thrive. After decades of gathering strategies and resources, I want to share with you the tools that have allowed me to live a full and meaningful life.

Treatments for MS

The real treatment for multiple sclerosis goes beyond medication. It includes diet, adapted exercise, stress management, and, crucially, mental health. Living with MS requires you to be resilient and listen to your body like never before.

My experience with MS

My illness has taught me to greatly appreciate the little things in everyday life. In my blog, I share my thoughts, my successes, and my setbacks. Everything you find here is my real experience dealing with the symptoms of multiple sclerosis.

The Power of Connection and Coaching

One of the things I have valued most is the power of connection. Feeling that you are not alone when those symptoms of multiple sclerosis strike is invaluable.

That is why my group coaching sessions are a safe space. I personally accompany you so that you can integrate the tools I have acquired. We work together so that you can transform the challenges of MS into an opportunity to live with greater awareness and well-being.

It’s not about curing, but about learning to live better, even with the symptoms of multiple sclerosis present. Sharing our experiences and strategies is an act of heroism and resilience.

Coaching helps you manage fatigue, communicate with your loved ones about your limitations (those annoying symptoms of multiple sclerosis that no one sees), and redefine your goals. It is support that goes beyond the doctor’s office.

I invite you to immerse yourself in this space. Explore the Blog, visit the Information Center, and if you feel you need a push, consider joining our Group Coaching sessions.

Together, we can show that living with multiple sclerosis is not only possible, but can be full of meaning.

Remember: You are not alone. We are a community of heroes.

Certification in Logotherapy Coaching from the Sociedad para el Avance de la Psicoterapia Centrada en el Sentido School

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You can write to me at this email address:
victoria@viviendoconesclerosismultiple.com

Best regards,

Victoria